When she was just 18 months of age, an "evil spell"
trapped Sofia into a body she couldn't control any longer:
unable to talk, to use her hands, to run like her friends,
since then Sofia fights every day a "spell" named.. RETT SYNDROME.
BUT ONE DAY SOFIA..
and 300,000 other girls like her will break the "spell" and
have their happy ending: they will conquer Rett Syndrome!!
Sofia is a strikingly beautiful and absolutely magic six years old little girl. The amazing beauty of Sofia would never let you suspect the sad reality hidden behind her lively eyes and enchanting smiles: Sofia suffers from Rett Syndrome, a rare neurodevelopmental disease that trapped her into a body not willing to respond to her intentions. (read more…)
Rett Syndrome (RTT) is a neurodevelopmental condition characterized by the loss of spoken language and hand use, coupled with the development of distinctive hand stereotypes. This disorder is seen in infancy and occurs almost exclusively in females. It is usually caused by a mutation of the MECP2 gene on the X chromosome. (read more…)
“One day Sofia… Research without boundaries to cure Rett Syndrome” has been established in 2014 with the purpose of conveying within a legal no-profit framework the enthousiasm and the support shown by all those who, directly or indirectly showed an interest in Sofia’s cause.
If you would like to, there are many ways support. You could make a donation through this website (via credit card or Paypal), you may become a member or a supporting member of our organization, you may help us in developing our awareness and fund-raising campaings and, should you be really commited, you may become a Mission Ambassador for One day Sofia… (read more…)
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